Mahdi Sharif-Alhoseini,Zahra Azadmanjir,Mohsen Sadeghi-Naini,Zahra Ghodsi,Khatereh Naghdi,Mahdi Mohammadzadeh,Amir AzarHomayoun,Kazem Zendehdel,Moein Khormali,Farideh Sadeghian,Seyed Behzad Jazayeri,Mojtaba Sehat,Habibollah Pirnejad,Edward C. Benzel,Gerard O'Reilly,Michael G. Fehlings,Alexander R. Vaccaro,Vafa Rahimi-Movaghar.[J].Chin J Traumatol,2019,22(5):300-303. [doi]
National Spinal Cord Injury Registry of Iran (NSCIR-IR) e a critical appraisal of itsstrengths and weaknesses
  
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KeyWord: Spinal cord injuriesInjury registriesData accuracyIran
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Author NameAffiliation
Mahdi Sharif-Alhoseini Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran 
Zahra Azadmanjir Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran 
Mohsen Sadeghi-Naini Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran 
Zahra Ghodsi Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran 
Khatereh Naghdi Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran 
Mahdi Mohammadzadeh Trauma Research Center, Kashan University of Medical Sciences, Kashan, Iran 
Amir AzarHomayoun Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran 
Kazem Zendehdel Cancer Research Center, Cancer Institute, Tehran University of Medical Sciences, Tehran, Iran 
Moein Khormali Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran
Students' Scientific Research Center, Tehran University of Medical Sciences, Tehran, Iran 
Farideh Sadeghian Center for Health Related Social and Behavioral Sciences Research, Shahroud University of Medical Sciences, Shahroud, Iran 
Seyed Behzad Jazayeri Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran 
Mojtaba Sehat Trauma Research Center, Kashan University of Medical Sciences, Kashan, Iran 
Habibollah Pirnejad Department of Health Information Technology, Urmia University of Medical Sciences, Urmia, Iran 
Edward C. Benzel Cleveland Clinic Foundation, Department of Neurosurgery, Cleveland, OH, USA 
Gerard O'Reilly Department of Epidemiology and Preventive Medicine, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia 
Michael G. Fehlings Toronto Western Hospital, University Health Network, Toronto, Ontario, Canada 
Alexander R. Vaccaro Department of Orthopaedic Surgery, The Rothman Institute, Thomas Jefferson University, Philadelphia, USA 
Vafa Rahimi-Movaghar Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran
Brain and Spinal Cord Injury Research Center, Neuroscience Institute, Tehran University of Medical Sciences, Tehran, Iran 
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Abstract:
      The National Spinal Cord Injury Registry of Iran (NSCIR-IR) is a not-for-profit, hospital-based, and pro spective observational registry that appraises the quality of care, long-term outcomes and the personal and psychological burden of traumatic spinal cord injury in Iran. Benchmarking validity in every registry includes rigorous attention to data quality. Data quality assurance is essential for any registry to make sure that correct patients are being enrolled and that the data being collected are valid. We reviewed strengths and weaknesses of the NSCIR-IR while considering the methodological guidelines and rec ommendations for efficient and rational governance of patient registries. In summary, the steering committee, funded and maintained by the Ministry of Health and Medical Education of Iran, the inter national collaborations, continued staff training, suitable data quality, and the ethical approval are considered to be the strengths of the registry, while limited human and financial resources, poor interoperability with other health systems, and time-consuming processes are among its main weaknesses.
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